Dorothy Peacock Elementary students Charles Munro and Ryan Laface spearheaded Autism Day at the Walnut Grove school. Charles and Ryan both have autism, and brought awareness to fellow students through an assembly that included the play, Cinder-Awesome. Troy Landreville Langley Times

VIDEO: 2 young B.C. pals spearhead autism awareness campaign

Two boys with autism spearhead campaign at Langley’s Dorothy Peacock Elementary

Autism spectrum disorder is a complex condition that impacts brain development and affects a person’s social relationships, communication, interests and behaviour: Province of British Columbia definition

This was a celebration for Ryan and Charles, and for inclusiveness and understanding.

Dorothy Peacock Elementary (DPE) Grade 7 students Charles Munro and Ryan Laface have been best buddies and classmates since kindergarten.

For seven years, they’ve shared a special bond, and have had each other’s backs.

Ryan and Charles have autism — and hope the lessons shared with their school on April 11, during the Walnut Grove school’s first ever DPE Autism Awareness Assembly and Celebration, will prove invaluable.

“Millions of people have autism, but they’re living good lives,” Ryan said. “Canucks Autism Network is helping these children in B.C. to do activities.”

Ryan hoped the presentation would change people’s attitude about autism.

“Whoever doesn’t know, it’s a disorder, not a disease,” he said. “Some people make jokes about autism and I’m tired of that.”

How special was this day to those at the school closest to Charles and Ryan? The question caused DPE special education assistant Sandi Binding to cup her hand over her mouth, her eyes welling with tears.

“These kids… they amaze me,” she said, her voice shaking with emotion. “Just their strength and their perseverance to power whatever is put in front of them is amazing. This is their last year here, and this is about letting them shine.”

“This is my passion,” Binding added. “I’ve worked with these two boys since kindergarten and this is part of this, is seeing them come so far.”

Binding said she and the DPE team of autism awareness members had “worked tirelessly” to prepare for the celebration, while raising $1,250 thus far for the Canucks Autism Network through the sales of 134 T-shirts (featuring an ‘It’s not autism, it’s awetism’ logo designed by a DPE Grade 7 student), a jersey campaign, and other fundraising initiatives.

The afternoon included a presentation from Charles and Ryan along with the Canucks Autism Network, followed by a short film about autism, and a “fractured fairy tale” called Cinder-Awesome (co-written by Charles and DPE intermediate resource teacher Adam Knowlson) about a princess with autism.

“There’s a lot of fractured fairy tales out there, but this one is by far the best I’ve ever seen,” said Ryan, who narrated the play with Charles.

“Our goal for all of this is to raise autism awareness and teach children how to be a good friend to someone with autism,” Binding said.

Charles told the audience “when we wear (DPE) blue (shirts) it’s not only keeping the conversation of autism going around, but it’s also making sure those with autism and their families don’t feel alone.”

A journey together

Serendipity brought the boys together, and helped answer questions that Ryan’s parents had about their son.

“I knew there was something wrong with him at two-and-a-half,” Ryan’s mom Michelle said. “But with the pediatrician we had, it just wasn’t happening. I was very fortunate that Jackie, Charlie’s mom, was connected to me because they both were in the class (in kindergarten). She helped guide me through that process of having him diagnosed (with autism) because the school knew there was something wrong with him.”

Jackie was the first person Michelle had met who has an autistic son.

“She totally supported me,” Michelle said.

Michelle remembers the day Ryan was diagnosed. “I did not sleep that whole night. It just engulfs your whole being.”

Jackie said, “When you get the diagnosis, they give you the pamphlets and it’s almost like, ‘okay, good luck.’ Then you have to go find the treatment for them, and find out what treatment suits your family because there’s lots out there, and find out what works for you, what doesn’t work for you, and about funding, and about a therapist…”

The boys have been in every class together all through their time at DPE.

“If one’s having a bad day, the other one steps up,” Michelle said. “They are a support for each other.”

“They have each other’s back,” Jackie said.

The thought of them being split apart brings Michelle to tears.

“I’m emotional because, I don’t know what they’re going to do next year, if they’re not going to be here anymore,” she said.

“They won’t be in the same class so they won’t have that support system as much,” Jackie noted.

For both families, the Canucks Autism Network has been there every step of the way.

“I found them when my son was five, and it’s amazing to go to (their) programs,” Jackie said. “If my kid’s going to have a meltdown on the floor, it doesn’t matter. You don’t feel like you’re alone and I think that’s the biggest thing: to feel you are part of a bigger group and there are more people out there.”

The progress Ryan and Charles have made since kindergarten amazes their moms.

“They probably couldn’t sit in the classroom for 25 percent of the day when they first started kindergarten, and now they are completely different boys, and I give all the credit to the staff at the school,” Michelle said.

“This (presentation) is a dream they’ve had since last year,” Jackie said, “and the school has let them have this dream, and let them shine, and to be able to let them shine and be themselves, and show the school who they really are, and what autism is.

They want friendships, too. They may not know how to go about it, and they may go about it a different way but they want acceptance just as much as everybody else.”

One in 66 children diagnosed

April is Autism Awareness month in B.C., and a recent report from the Public Health Agency of Canada shows one in 66 Canadian children and youth ages five to 17 are on the autism spectrum.

Laurie Mawlam, the executive director at Autism Canada, says the report shows that the prevalence of autism is on the rise.

“Regardless if this increase is due to better diagnostics, increased awareness or increased incidence, there is an urgent need for a national autism strategy. This long awaited Canadian data will be invaluable for planning and budgeting for services to support Canadians living with autism.”

The finding is based on analysis of 2015 data supplied by six provinces and one territory.



troy.landreville@blackpress.ca

Like us on Facebook and follow us on Twitter

 

Dorothy Peacock Elementary Grade 7 students Charles Munro and Ryan Laface narrated the play, Cinder-Awesome, which highlighted an assembly at their school which celebrated its first Autism Day on April 11. Charles and Ryan have been close friends as well as classmates since kindergarten, and both have autism. Troy Landreville Langley Times

Just Posted

Big win for Kootenay ICE against Kamloops Blazers

ICE snap their 12 game losing streak.

Jingle Bell Walk takes over school neighbourhood

Kootenay Orchards Elementary School collects donated food items for the Cranbrook Food Bank Society

Parkour: more than jumps and flips

Parkour has been becoming a fast favourite with kids due to its popularity on the internet.

Avalanche Canada issues special public warning

Very weak layer buried under recent snow a cause for concern

Special Public Avalanche Warning for Most Mountainous Regions of BC

Avalanche Canada is issuing a Special Public Avalanche Warning for recreational backcountry… Continue reading

REPLAY: B.C’s best video this week

In case you missed it, here’s a look at the replay-worth highlights from this week across the province

Mapping the way along Pathways to Recovery

Top of the World Ranch Treatment Centre hosts community discussion about how to find and pursue recovery locally

Canucks score 3 power-play goals in 4-2 win over Oilers

Vancouver sniper Boeser has 6 goals in last 5 games

Microscopic parasite found in Prince Rupert water affecting thousands

More than 12,000 residents affected by the boil water advisory issued Dec. 14

Trudeau lashes out at Conservatives over migration “misinformation”

Warning against the “dangers of populism,” Trudeau says using immigration as a wedge political issue puts Canada’s future at risk.

B.C. hockey coach creates ‘gear library’ to remove cost barrier of sport

Todd Hickling gathered donations and used gear to remove the cost barrier for kids to play hockey.

Canada’s ambassador meets with second detainee in China

Global Affairs says John McCallum, Canada’s ambassador to China, met with Spavor Sunday

‘They’re coming:’ Flying cars may appear in urban skies by 2023

Air taxis will number 15,000 and become a global market worth $32 billion by 2035

B.C. VIEWS: Andrew Wilkinson on taxes, ICBC and union changes

Opposition leader sees unpredictable year ahead in 2019

Most Read